It’s only been a few days since I opened the floodgates, and forgive me for sounding trite, but the support has been overwhelming. All of the kind words, prayers, pep talks, and devotionals really are appreciated. I even had a handful of families from all over the country reach out and share their experience which is ah-maz-ing because that was a huge reason why I even started the blog.
If there has been one thing that is for sure, it’s that people are always willing to step up and be there. Our families, on both sides, and friends have been there at the drop of a hat to come over to watch Will when we had appointment and hospital stays. Or to just sit in with Paige when Andrew and I needed a break or let us shower in peace. They’ve been there to help us run errands, fill our fridge, and babysit both kids to make sure Andrew and I could get out of the house. Needless to say, we have a huge support system that is there to talk and listen when we have our weak moments and are there to celebrate with us when Paige (and all of us, really) are doing well.
Getting the diagnosis was absolutely excruciating but telling people the news was no walk in the park either. Every single person has handled it differently. Mostly everyone was quick to offer help. Some were speechless. So, so many people went out and put Paige on their prayer chains. We’ve had countless messages from people offering support and well-wishes. People have been there to let us cry and make us laugh. Few people even retreated and laid low because they didn’t know what to say and some shared their own stories. It’s been extremely touching and we thank you all.
My childhood friend, and a HUGE inspiration for starting this blog, said it the best…
“If there is one thing that I have learned through my own health issues it’s that help is good, and you will be amazed at the people you will find that help you.”
She is completely right!
(and you should check out her blog, Breasts of Burden, about her journey through a bilateral mastectomy with reconstruction. It’s incredible and I look up to her very much.)
Tomorrow, I will be posting from Children’s Hospital in Pittsburgh because Paige will be having a followup 24 hour Electroencephalogram (EEG) to see she is still having Infantile Spasms. Wish us luck and thank you all, again!